Halloween is one of the best nights of the year for kids who get to collect candy and dress up. For kids with food allergies, it is still fun, but can also be dangerous. Moms of kids with food allergies know just how stressful it can be to have kids who can’t eat certain foods … Read more
If you have ever tried to get a baby to take an elemental or amino acid based formula, you know it is quite a task! If you have ever tasted one of these formulas yourself, you probably know why! It smells like sour milk and tastes like hot garbage. But, if it’s the only thing … Read more
One of the best days in the life of a child with FPIES (and their parents) is the day they can finally declare themselves free from FPIES. After months or years of trialing one food at a time and holding their breath, those kids are finally free to eat what every other child can eat. … Read more
As a mom of kids with severe food allergies, few things struck fear into my heart as much as having to go back to work and leave them in the hands of strangers. I spent many sleepless nights and cried way too many tears over this decision. For us, it was one of the most … Read more
If you or someone you love has been diagnosed with FPIES (Food Protein Induced Enterocolitis Syndrome) then you’ve probably already noticed that it’s largely considered a condition that affects kids. As an adult with FPIES, it’s hard to get valuable information and it’s a little scary and frustrating because you don’t know what’s going on. … Read more
When you first get started with a diagnosis of Food Protein Induced Enterocolitis, (FPIES) there are a ton of questions. When we were there at the beginning of this journey several years ago, there weren’t many answers. Since then, there has been more research published that has helped connect some of the dots, and we … Read more
Food Protein Induced Enterocolitis (FPIES) is a condition that doesn’t have a specific test to determine a diagnosis. There are several other tests that a doctor will most likely run before giving you an FPIES diagnosis, but that is done to rule out other conditions that can look fairly similar. There is no magic blood … Read more
Dear Family and Friends of people with FPIES (and really, food allergies in general), There are a lot of things that we wish you knew, and some things we want to ask for but aren’t quite sure how. First of all, if you are here reading this, then you already deserve a thank you. Thank … Read more
Because FPIES causes delayed food reactions, starting new food trials at a time that works for your family is something to consider. There are several ways that I’ve seen families schedule out their food trials, and there might be one or two ways that work better for you or your child than others. There are … Read more
I wasted a lot of time trying to find a formula that would work for my baby with food allergies. But, there are so many types of infant formulas out there, each one with different ingredients and different claims. Some say they are best for spit up, fussy baby, colic calm, etc. But if you … Read more
It’s hurricane season here in the south. There has been an increase in the number of alerts on my phone warning me of tropical storms gaining strength as they near land, hurricanes sweeping around and knocking cities and countries to the ground, and evacuation notices as they become more urgent and less of a suggestion. … Read more
The first few months with an FPIES diagnosis can be overwhelming to say the least. You start looking into it and realize any food potentially can be a trigger food, reaction times can vary, and reactions severity can vary greatly from child to child. One thing that was really confusing for me when we were … Read more
One of the biggest challenges parents face when trying to figure out FPIES for their kids is trying to figure out what foods to trial next. When you have a child that reacts to a wide range of foods, there is always an underlying sense of fear and uncertainty surrounding new foods. Sometimes it feels … Read more
There was a time in my life (before I had kids, when I thought I knew everything) when I thought it was ridiculous that schools were banning peanuts, or making kids with peanut butter sandwiches eat at a separate table. Why not just shove all of those allergy kids over in the corner and let … Read more
One of the scariest, darkest places we walked through as a family with a new baby with food allergies was when we realized that our daughter was reacting to foods through my breastmilk. It was overwhelming and scary, and there was conflicting information everywhere we turned. We were told breast is best, but what were … Read more