Baby formula is expensive, and with a hungry baby, it doesn’t last long. Many people wonder if insurance will help with some of those expenses. Health insurance does not typically cover regular soy or milk-based formula, but there are other programs such as WIC that can help with those costs. However, if there is a … Read more
If you haven’t already, check out part 1 of this post with other ideas too! Finding birthday cake ideas for a one or two year old with food allergies could be one of the most challenging and heartbreaking parts of the allergy journey. It’s so hard when you want your child to be able to … Read more
One of the best days in the life of a child with FPIES (and their parents) is the day they can finally declare themselves free from FPIES. After months or years of trialing one food at a time and holding their breath, those kids are finally free to eat what every other child can eat. … Read more
Because FPIES causes delayed food reactions, starting new food trials at a time that works for your family is something to consider. There are several ways that I’ve seen families schedule out their food trials, and there might be one or two ways that work better for you or your child than others. There are … Read more
I wasted a lot of time trying to find a formula that would work for my baby with food allergies. But, there are so many types of infant formulas out there, each one with different ingredients and different claims. Some say they are best for spit up, fussy baby, colic calm, etc. But if you … Read more
The first few months with an FPIES diagnosis can be overwhelming to say the least. You start looking into it and realize any food potentially can be a trigger food, reaction times can vary, and reactions severity can vary greatly from child to child. One thing that was really confusing for me when we were … Read more
One of the biggest challenges parents face when trying to figure out FPIES for their kids is trying to figure out what foods to trial next. When you have a child that reacts to a wide range of foods, there is always an underlying sense of fear and uncertainty surrounding new foods. Sometimes it feels … Read more
One of the scariest, darkest places we walked through as a family with a new baby with food allergies was when we realized that our daughter was reacting to foods through my breastmilk. It was overwhelming and scary, and there was conflicting information everywhere we turned. We were told breast is best, but what were … Read more
When my daughter was born, she cried a lot. Like, a lot. I remember preparing to leave the hospital thinking there was something wrong with me as a mom, because I couldn’t seem to comfort my new baby, no matter what I did. Everyone else was leaving with these sweet, sleeping little babies, and I … Read more
One area of FPIES that holds a significant amount of confusion and fear is the area of food trials. Choosing new foods to try can feel like a twisted game of Russian Roulette, and it’s especially scary when you’ve seen your child vomit uncontrollably and go into shock. So how do you trial new foods … Read more
If you have ever watched your FPIES child throw up over and over until they go limp and gray, you know how scary food reactions can be. One of the hardest and scariest things we had to figure out when my daughter was first diagnosed with FPIES was when a food reaction could turn into … Read more
